By Luck in Finland

The Pediatric Moonshot podcasts have focused on the clinical community. In this episode our guests are Christine Woods and her son Hampton — both patients. Hampton started out life diagnosed with idiopathic cirrhosis. He was the recipient of one of the first non related donor liver transplants. Sixteen years later he was losing his ability to walk. No one could diagnose why. By luck his orthopedists brought his images to a conference in Finland. His clinician showed it to a random doctor asking for a second opinion. That doctor said you’re looking in the wrong place. You’ve been looking where the pain is. You need to be looking at his pelvis. It’s May-Thurner’s syndrome. Hampton was lucky. What about the children who weren’t this lucky? We can share photos of dogs and cats with our friends around the planet, but we can’t get a 2nd opinion from experts in anywhere in the world.

But the story does not end there. Listen and learn what happened to Christine.